Ellie’s Journey: Sight Unseen
This space shares Ellie’s story — a journey shaped not by what can be seen, but by what can be felt, heard, and understood from the heart. Ellie lives with Septo-Optic Dysplasia (SOD), a rare neurological condition affecting her vision and development. But Ellie’s world isn’t defined by sight. It’s shaped by love, trust, touch, and the way she experiences life beyond what most people notice. Through this site, we share Ellie’s journey, raise awareness about childhood blindness and SOD in Canada, and help other families feel less alone.
Picture of Ellie smilling, she has two small pony tails and a pink long sleeve on
Ellie side profile, smilling
About Ellie
Ellie experiences the world a little differently — through sound, touch, movement, and connection. From early on, we knew Ellie experienced life a little differently. After many appointments, tests, and conversations with specialists, we learned that Ellie lives with Septo-Optic Dysplasia (SOD), a rare neurological condition that affects her vision, hormone regulation, and development. Her diagnosis helped us understand that her challenges were never about effort or behavior — they were about how her brain developed and how she experiences the world. Ellie works incredibly hard every day through therapy, exploration, and learning new ways to move, communicate, and interact with her surroundings. But more than anything, she is curious, loving, and full of personality.
Based in Canada, we document Ellie's milestones and advocate for early intervention and support for blind and partially sighted children. By sharing our stories and curated resources, we hope to build a supportive community for families navigating similar paths and foster deep awareness for SOD and childhood blindness.
Latest Stories
Resources & Support for Families
Essential Tools & Equipment
Practical items that make daily life easier - adaptive toys, sensory toys and mobility supports.
Funding & Financial Support
Guides to available funding programs, disability benefits, and grants for families.
Braille & Literacy Supports
Resources for introducing Braille, tactile learning, and accessible literacy tools.
Parent Guidance & Tips
Real life strategies, sensory play ideas, and communication support for parents.
AWARENESS — SUPPORT — KINDNESS —