When most people think about seeing the world, they think about what their eyes take in. For Ellie, the world is experienced differently. It’s built from voices she recognizes, hands she trusts, textures she explores, and the feeling of being safe and loved. Ellie lives with blindness and Septo-Optic Dysplasia (SOD), but her story isn’t defined by what she can’t see. It’s defined by everything she feels, learns, and experiences in her own way. Ellie sitting on the floor, sun

When your child is diagnosed with Septo-Optic Dysplasia (SOD), it can feel like the ground shifts under your feet. Suddenly there are new medical terms, specialists, appointments, and more questions than answers. For many parents, the hardest part isn’t just understanding the diagnosis — it’s understanding what it actually means for their child’s everyday life. This post is meant to explain SOD in a clear, compassionate way, while also acknowledging the real-life experience o

Childhood blindness is a pressing issue that affects thousands of children across Canada. Despite the advancements in medical technology and healthcare, many children still face the risk of losing their sight due to various factors, including congenital conditions, injuries, and diseases. Raising awareness about childhood blindness is crucial not only for early detection and intervention but also for fostering a supportive community that can help these children thrive. In thi